Down’s Syndrome Presentations and Events

at the RCPCH Spring Meeting April 2008

Mon 14th, 5pm – Thurs 17th, 12 noon

DSMIG information point

at the Harlow Printing Trade stand

Tuesday 15th

Childhood disability session:

09.00

Beki James
The Children with Down’s syndrome Study (CDSS); a robust evidence base for the management of children with Down’s syndrome

09.20

Helen Wolfenden and Marian McGowan
Obstructive sleep apnoea syndrome (OSAS) in children with Down’s syndrome. An assessment of prevalence and symptom frequency in an outpatient Down syndrome population

18.00

DSMIG Drinks/information session at the Harlow printing stand – all welcome

20.00 approx

Informal supper in the Brasserie at the Pavilion Hotel, Fulford Road at 8pm. Meet at the Harlow Printing stand 6.30 - 7.30ish or at the hotel.

Wednesday 15th

Personal practice sessions:

7am-8am, repeated at 1pm-2pm

Liz Marder, Jennifer Dennis, Marian McGowan, Sheila Puri
Running a Down’s syndrome service

SESSION OUTLINE:

- Introduction

- The Nottingham Down’s Syndrome Children’s Clinic
Liz Marder, Nottingham

- Integrating the service for Children with Down’s syndrome within general Neurodisability Clinics
Marian McGowan , St George’s, London

- Parents Views of a dedicated Down’s syndrome Clinic
Shiela Puri, Leeds

- DSMIG and resources to support a Down’s Syndrome Service
Jennifer Dennis. Oxford

- General discussion/ debate on different service models/Questions