- While great care has been taken in selecting sites for inclusion here,
DSMIG is not responsible for the content of external sites and
the Group does not necessarily endorse all the information they contain.
Main Down's Syndrome support organisations
Links and contact details for the main Down's Syndrome and other support
organisations
DSMIG Medical Library
Links to information about specific medical conditions
Intellectual Disability
Interactive training site for medical students and health professionals
created by St. George's Hospital Medical School and the Down's Syndrome
Association.
www.intellectualdisability.info
Len Leshin 
Medical information site written for parents by an American paediatrician
- Dr Len Leshin. Also useful for healthcare professionals. Some useful
abstracts from recent papers. Some information not relevant to UK practice.
www.ds-health.com
Mosaic Down's Syndrome (UK)
Website and e-group for the UK parent support organisation for Mosaic
Down's Syndrome
www.mosaicdownsyndrome.org
Mosaic Down Syndrome (USA)
A parent support site from the USA which has specific information
about
mosaic Down's sydnrome which is useful for healthcare professionals.
www.mosaicdownsyndrome.com
UK National Down Syndrome Cytogenetic Register
Unique information from the largest existing DS births database. Currently
over 14,000 anonymous registrations. At least 95% ascertainment. Up to
date information about uptake and outcome of prenatal diagnosis, cytogenetics
and a range of demographic factors.
www.mds.qmw.ac.uk/wolfson/ndscr/
OMIM (Online Mendelian Inheritance in Man)
Site from the National Institutes of Health that gives very comprehensive
genetic information. Search the OMIM database for "Down syndrome".
Access ref #190685.
www.ncbi.nlm.nih.gov/omim/
Cytogenetics Resources
Cytogenetics Resources on the site of the Genetics Education Centre, University
of Kansas Medical Centre.
www.kumc.edu/gec/prof/cytogene.html
Leeds Antenatal Screening Service (LASS)
Information about antenatal screening for a range of disorders including
Down's syndrome. Contact information for LASS is available on the site
including a telephone help-line run by counsellors and fetal medicine
doctors.
www.leeds.ac.uk/lass/
Down Syndrome ListServ
The ListServ website appears to be no longer available.
Vitamins & Minerals for children with Down’s syndrome
Now running from ICH and recruiting babies in Greater London and the West
Midlands.
www.cddg-downs.org.uk
DSMIG is not responsible for the content
of external sites.
If you have suggestions for useful sites to include here or in the Medical
Library please contact us
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