22 April 2008
Updated membership application forms now available
New contact address and phone number for Down Syndrome Ireland
In the  members' section, new member profiles and updated membership list, plus a number of minutes and presentations from previous meetings.
15 April 2008
Provisional programme for DSMIG June meeting updated
29 March 2008
Details of Down's Syndrome presentations and events at the RCPCH 2008 Spring Meeting are available on the noticeboard. Details of the informal members dinner on Tues 14 will be posted shortly.
A number of new and archive documents are now available online:
20 November 2007
Programme for the One-day Symposium & Member's Meeting on 23 November is now available.
Membership List updated ( members only)
2 October 2007
For members
An updated Membership List and slides from Helen Wolfenden's presentation Audit of Obstructive Sleep Apnoea from the June 2007 meeting are now available.
16 August 2007
Preliminary information on the Noticeboard and in the members’ section about meetings on Nov 23rd 2007 and June 5th 2008.
Presentations from the One-day Symposium and Members Meeting on 9 June 2007 are now available for members to download.
A small change has been made to the 2006 version of this document. At the end of the first para of ‘treatment of squint’ the lines beginning ‘the drops used nowadays’ have been deleted and new material substituted. There have otherwise been no changes. The updated version is available to download as a PDF.
Membership list updated ( member-access only)
06 June 2007
The programme for Friday's meeting has been slightly re-arranged.
05 June 2007
The final programme for Friday's members meeting in Glasgow is now available.
New DSMIG contact number
The DSMIG Nottingham office has a new direct phone number: 0115 962 7658 ext 31158/7. The new direct dial number will be available from 21 June and will be 0115 883 1158/7.
29 March 2007
Steering Group and Business Meeting Minutes for Oct 2006 are now available from the Members Section Meetings page ( member access only).
22 March 2007
Steering Group and One-Day Symposium, June 2007
Details of the DSMIG Steering Group Meeting (Thursday June 8th) and one-day symposium and members' meeting (Friday June 9th), are now available on the Noticeboard. Both will be held in Glasgow. The keynote topics for the meeting are epilepsy and rheumatology. Non-members are welcome to the Open part of one-day symposium on Friday June 9th.
The new combined screening booklet 'Screening Tests for You and Your Baby' is now available.
Edited transcript and Powerpoint Slides of
Professor David Elliman's talk at the November 2005 members' meeting
Profiles of new members ( members only)
The information on new members which is circulated at DSMIG meetings is now available online for members joining since November 2005.
List of UK specialist clinics
The list of clinics on the page on Healthcare services and support for people with Down’s syndrome in the UK has been updated. We now have 15 clinics listed and are working to compile a more comprehensive directory. If you know of or are involved in a clinic which isn't listed please let us know.
19 March 2007
Details of open business meeting, DSMIG information point and informal dinner
12 February 2007
Membership List updated ( Members only)
25 January 2007
Printed copies of this information booklet from the UK National Screening Committee have now run out. You can still download copies in PDF format from www.screening.nhs.uk/downs/women.htm. A new booklet combining information from five antenatal and newborn screening programmes, including Down's syndrome, will be available in March.
Details of Useful Organisations have been updated with the latest information.
Links to Tony O'Sullivan's handouts and slides from the November 2003 member's meeting have been fixed.
Archive
23 November 2006
Presentations by Dr George Capone at the DSMIG October 2006 Members' Meeting (member access only) are now available from the Members section
Updated information on how and where to obtain the information booklet "Testing for Down's syndrome in Pregnancy" from the UK National Screening Committee
25 October 2006
British Gymnastics have kindly given us permission to reproduce their information pack on the participation by people with Down's Syndrome in gymnastics and trampolining. The pack includes the British Gymnastics screening form which must be completed by a Medical Practitioner before a child or adult with Down's Syndrome can participate in these activities.
Our HONcode accreditation has been confirmed for another year. The HONcode is the Health On the Net Foundation's initiative to improve the quality of medical information on the Internet, and accredited sites must conform to 8 principles for supplying reputable medical information. The DSMIG website has been acredited since 2002.
13 October 2006
Three of the DSA Medical Series booklets have been updated. It will be some time before the updated booklets are available from the DSA, but the updated versions are available now in PDF format from this website:
Updates to the other booklets will be available later this year.
Full edited transcript of paper given by Dr Charlie Charlton at RSM conference April 2001.
Presentations from May 2006 Members Meeting (member access only)
Programmes from past DSMIG meetings are now publicly available from the Noticeboard
A series of quick reference sheets in A4 format, giving key statistics and data on prevalance/incidence, prevalence by maternal age, dementia and life expectancy, are now available from the Medical Library.
27 September 2006
15 September 2006
22 August 2006
- Provisional programme and change of date for the autumn members meeting to 13 Oct 2006. See Noticeboard for details .
17 August 2006
9 May 2006
DSMIG Members Meeting, May 2006
Final programme now available
21 April 2006
13 March 2006
DSMIG Website Workshop (RCPCH Spring Meeting, April 2006)
If you are coming to the RCPCH Spring Meeting please consider coming to our website workshop on April 5th from 1-3pm. The session is open to all comers, not just DSMIG members. The aim is to gather feedback from website visitors and look at how this site can be improved. The session will be informal and interactive. Even if you do not visit the site often please join us as all input is valuable.
No technical skills are necessary! We simply want to learn more about how medical professionals might use the site on a day-to-day basis. So all you need to bring is yourself.
Other DSMIG Activities at the RCPCH Spring Meeting (York), 3-6 April 2006
Details of the DSMIG information point and informal dinner
Updated Vision Guideline and Related Materials
Transcripts and Minutes from DSMIG Members Meetings (Members Only)
Guidelines Review Schedule
We receive many queries about Guideline updates. Our review schedule is now available online.
DSMIG Members Meeting, May 2006
Outline programme now available
The November meeting has been set for 10th November 2006 at the Royal Society of Medicine, London.
Bright Beginnings
The Downs Syndrome Research Foundation has produced a delightful booklet about Down’s syndrome called Bright Beginnings. However we are concerned that this may give some new parents the impression that there is little in the way of medical services for children with Down’s syndrome in the UK. Click here to find out more about healthcare services and support in the UK
12 January 2006
Membership list updated (member access only)
24 October 2005
Details of forthcoming events from the UK Down's Syndrome Assocation, including:
- Sexuality & Relationships: Supporting Adults with Learning Disabilities
Thursday 27th October 2005
- Supporting Pupils with Down's Syndrome: 3 day NVQ accredited course
Friday 13th January, Friday 3rd February, Friday 3rd March 2006
- Let's talk about sex and relationships
Short seminars. Postponed until January 2006
Full details and booking forms from the Noticeboard
20 October 2005
Dates for forthcoming members meetings are now available. See the noticeboard
for details. Provisional Programme for November 2005 members' meeting
17 October 2005
A number of new documents from recent members' meetings are now available
for Members, all in PDF format:
Also powerpoint slides from Leela Baksi of Symbol UK's presentation at
the May 2005 meeting "Assessment
and management of problems arising from oral motor dysfunction in children
with Down’s Syndrome"
12 April 2005
DSMIG business meeting and social
events at RCPCH, York, April 19th (member access only)
The updated provisional programme
for the members' meeting at the Langdon Down Centre, Teddington, Middx
on May 27th is posted on the Noticeboard. The special topic is "oral
motor problems in children with Down's syndrome". We are very fortunate
to have as our guest speaker Professor David Andrade from Portugal. David
is a paediatric dentist who has pioneered the use of the Castillo Morales
plate in Portugal. He will talk about this and other dentomaxillo-facial
treatments in the context of dentomaxillo-facial development in Down's
syndrome.
As this is likely to be of interest to speech and language therapists
and other healthcare professionals non-members are welcome if places are
available - see Noticeboard
for registration details
17 February 2005
Membership list updated
(member access only)
21 January 2005
Growth Online: Introducing
the new Online Growth Chart service (5Mb. Members only)
Powerpoint Presentation from recent Members Meeting by Vince Hume, Southern
Regional Sales Manager - Harlow Printing, South Shields. Please note this
is a large download.
15 November 2004
Latest additions to the Medical Library:
4 November 2004
The final programme for the
members' meeting in London on Nov 19th is posted in the members' area.
The special topic for the afternoon session in Obesity and Exercise. This
session will be open to healthcare professionals who are non members if
places become available. Fee £20. For further details apply to:
Joyce Judson info@dsmig.org.uk
We presented two posters (one about the website and one about the PCHR
insert) at the European Academy of Childhood Disability meeting in Edinburgh
on Oct 6th - 8th. Members can view these in the Members' Section.
The DSMIG information service
July 2000 - May 2003: facts and figures (member access only)
Power point presentation from the Members' Meeting June 2003.
27 September 2004
Membership list updated (member access only)
23 August 2004
Useful Organisations and Links
Contact details for MENCAP (tel, fax and email), Enable (website), and
Down's Syndrome Ireland (email) have been updated.
New Membership Application Form available in both Word
and PDF format.
16 August 2004
Updated membership list now available
(member access only)
Slides and handouts now available
for the presentation on "Transition: Planning with disabled
young people for their adult life" given by Tony O'Sullivan,
Community Paediatrician, Lewisham at DSMIG Members Meeting, Nov 2003.
(Members only)
4 May 2004
Updates on Future Meetings
Advance information on November meeting's specialist topic: "Obesity
and exercise", plus provisional date for the May '05 meeting.
4 May 2004
New membership information
and application form available.
4 May 2004
Final programme for Dublin meeting
confirmed
25 March 2004
'Open' Steering Group Meeting and
Informal Members Dinner
Dinner: MONDAY 29th MARCH. Steering Group: TUESDAY 30th MARCH, 12.00 -
15.00 HRS. RCPCH Conference. YORK
4 March 2004
We continue to expand the new Members' area. Minutes
and case discussions from the May 2002 Members meeting are now available,
along with an updated membership
list.
If you are a DSMIG member and have not yet registered to access the new
members' area, please email Joyce Judson on info@dsmig.org.uk
your preferred username and password.
25 February 2004
27 January 2003
New Members Area launched
The new members area contains a wealth of information useful to DSMIG
members, including full minutes and summaries of case discussions from
past meetings, DSMIG newsletters, and an up-to-date membership list. Members
who requested a username at the November 2003 meeting should have received
passwords etc... by email. Any other members can request a password by
contacting Joyce Judson (e: info@dsmig.org.uk).
27 January 2003
Site Updates
A range of other site updates have also been completed.
- New Contact forms for medical
and non-medical queries. These will make it easier for us to deal with
enquiries, and also bring us fully into line with data protection best-practice.
- New Support Our Work page with
details of DSMIG's funding and how you can contribute to our work.
- Updated Book Reviews with details
on how to order copies through Amazon.
We receive a small commission for any books ordered through these links.
If you'd like to support our work, you might consider buying any books
you want from Amazon through these links.
- Added HON
Code logo, showing that this site subscribes to the 'Health
on the Net' principles for online medical information.
19 November 2003
Programme for Members
Meeting: updated with new start time for presentations of 12.15pm.
11 November 2003
Members Meeting: Friday 21 November 2003
Programme and registration
information now available.
29 July 2003
Details of the RSM Forum on Learning Disability one-day conference 'Understanding
the genetic causes of learning disability: how knowledge can guide good
education and social practice'.
Full programme and booking information from RSM
website.
29 July 2003
Details of the RSM Forum on Learning Disability series of four evening
meetings on 'Sexual wellbeing,
relationships, responsibilities and reproductive health for people with
learning disabilities'.
Full programme and booking information from RSM
website.
12 June 2003
Final programme for Members'
Meeting on 20 June now available.
16 April 2003
Sleep related upper
airway obstruction in Down's syndrome: Diagnostic approaches and treatment.
(PDF)
Summary of conference paper given by Dr Martin Samuels at the conference
'More Medical Issues in Down's syndrome' held at The Royal Society of
Medicine, London, on April 26th 2001. See Conference
Procedings in DSMIG Information Resources for full transcript and
keypoints, as well as other papers presented at the conference.
20 March 2002
Change of Date for Next Members' Meeting
The next members' meeting will now be held in Nottingham on June 20th,
not May 23rd as previously advertised.
14 March 2002
Provisional programme for Members' Meeting on 20 June (note!
change of date from 23 May) now available [replaced by final
version, 12 June 2003]. Dates for Steering group meeting at RCPCH
conference in York and members' meeting in November 2003 also added to
noticeboard.
22nd November 2002
New cross section stature,
weight and head circumferences for Down's Syndrome in the UK and Republic
of Ireland. Styles ME, Cole TJ, Dennis J, Preece MA. Arch Dis Ch 2002
87 104-108.
Background information about the new UK Down's syndrome growth charts
which were commissioned by dsmig.
22nd November 2002
Cushing's syndrome, growth impairment, and occult adrenal suppression
associated with intranasal steroids. Perry, R J; Findlay, C A; Donaldson,
M D C Archives of Disease in Childhood Volume 87(1) July 2002 pp 45-48.
This paper draws particular attention to a child with Down's syndrome
who became floridly Cushingoid and with growth failure due to long standing
use of intranasal steroids. Adrenal suppression was seen not only with
betamethasone but also with budesonide, beclomethasone and flunisolide
nasal preparations. The authors advise that 'a careful enquiry as to the
use of intranasal steroids should be routine in children presenting with
unexplained growth failure or Cushing's syndrome. Particular vigilance/awareness
is required in children with dysmorphic syndromes.'
22nd November 2002
Diagnosis of Down's syndrome in neonates. Hindley D, Medakkar S,
Arch Dis Child Neonatal Ed 2002 87 F220-221.
This short report looks at clinical accuracy in the diagnosis of DS in
newborns revealing nationally 36% false positives. It is suggested that
use of clinical diagnostic indices should be investigated in an attempt
to improve the situation and reduce distress caused to families by false
clinical diagnoses. The dsmig network could possibly help in this.
28th June 2002
Respiratory disorders in
Down's syndrome: Overview with diagnostic and treatment options
Summary of conference paper given by Dr Iolo Doull at a conference 'More
Medical Issues in Down's syndrome' - held at The Royal Society of Medicine,
London, on April 26th 2001 (pdf).
28th June 2002
Blood diseases in
people with Down's syndrome: Overview and update
Summary of conference paper by Professor Judith Chessells at a conference
'More Medical Issues in Down's syndrome' - held at The Royal Society of
Medicine, London, on April 26th 2001 (pdf).
28th June 2002
Gastrointestinal disorders
in people with Down's syndrome: An overview
Summary of conference paper by Dr Charlie Charlton at a conference 'More
Medical Issues in Down's syndrome' - held at The Royal Society of Medicine,
London, on April 26th 2001 (pdf).
|
