Medical vulnerability of individuals with down syndrome to severe COVID-19 – data from the trisomy 21 research society and the UK ISARIC4C survey published by The Lancet

International study finds increased COVID-19 mortality among adults with Down syndrome

Research by the Trisomy 21 Research society (T21RS) found increased COVID-19 mortality among adults with Down Syndrome compared to the general population, supporting the need to prioritize vaccination for those with the genetic disorder.

The results of the study were published this week in The Lancet’s EClinical Medicine.

Please note, we do not yet have the evidence related to children less than 16.

 

RCPCH Digital Growth Chart Project to include Down syndrome Growth Charts

The Royal College of Paediatrics and Child Health has developed an API ( Application Programme Interface). This is a national , web-based tool that will allow those wishing to use online growth charts, including the developers of electronic patient records to build accurate, validated  growth charts , with associated calculations into their applications.

DSMIG has worked with the RCPCH to include the UK Down Syndrome Growth Charts in this product .

In the mean time more general information about the RCPCH Digital Growth Chart for potential users and developers can be found using the links below.

General information

Presentation ” Digital Child Growth Assessment- from print to digital “

Demonstration site https://growth.rcpch.ac.uk/

Open forum including information for developers https://openhealthhub.org/c/rcpch-digital-growth-charts/47

Any enquiries – growth.digital@rcpch.ac.uk