Medical vulnerability of individuals with down syndrome to severe COVID-19 – data from the trisomy 21 research society and the UK ISARIC4C survey published by The Lancet

International study finds increased COVID-19 mortality among adults with Down syndrome

Research by the Trisomy 21 Research society (T21RS) found increased COVID-19 mortality among adults with Down Syndrome compared to the general population, supporting the need to prioritize vaccination for those with the genetic disorder.

The results of the study were published this week in The Lancet’s EClinical Medicine.

Please note, we do not yet have the evidence related to children less than 16.

 

NEXT DSMIG meeting Thursday 17th June 2021 to be held jointly with BACD and BSPGHAN at the RCPCH online conference

The next DSMIG meeting will be held as part of the RCPCH online conference which has now been rescheduled for June 2021.

This year there will be a joint meeting with DSMIG, BSPGHAN and BACD with a general theme of gastrointestinal issues in children who have Down Syndrome and also parent perspectives of having a child with disability during COVID. I am sure a lot of information and experiences can be generalised to other children that we manage in our clinical practice.

The date of the meeting is Thursday 17th June 2021 15:30-18.00 and details for registration will be on the college website.

DSMIG are welcoming abstracts for poster or oral presentation and I would be grateful if you or your colleagues (including multidisciplinary team members) would consider submitting these. Please do share this flyer within your local networks.

Abstracts submission deadline is 4 weeks away on 10th March!  Further info on abstract submissions below:

https://www.rcpch.ac.uk/news-events/rcpch-conference

COMING SOON – New RCPCH Digital Growth Chart Project to include Down syndrome Growth Charts

The Royal College of Paediatrics and Child Health has developed an API ( Application Programme Interface). This is a national , web-based tool that will allow those wishing to use online growth charts, including the developers of electronic patient records to build accurate, validated  growth charts , with associated calculations into their applications.

DSMIG is working with the RCPCH to include the UK Down Syndrome Growth Charts in this product .

The Digital Growth Charts will launch in early 2021, and we will provide updates  about the  Down syndrome charts as they become available.

In the mean time more general information about the RCPCH Digital Growth Chart for potential users and developers can be found using the links below.

Presentation ” Digital Child Growth Assessment- from print to digital “

Demonstration site https://growth.rcpch.ac.uk/

Open forum including information for developers https://openhealthhub.org/c/rcpch-digital-growth-charts/47

Any enquiries – growth.digital@rcpch.ac.uk