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Covid-19 Update – 19/07/2021  

The UK Joint Committee on Vaccination and Immunisation (JCVI) have now recommended  that vulnerable young people at greatest risk from Coronavirus can benefit from COVID-19 vaccines. Young people with Down syndrome aged 12 and over are included in this recommendation, alongside others with immunosuppression, multiple or severe neurodisabilities.

The Pfizer/BioNTech vaccine has been approved by the MHRA as safe and effective for those over 12.

Details about how this recommendation will be implemented by the NHS are awaited.

There is no current evidence that the new UK variant of COVID-19 strain is worse than the previous COVID-19 strain, in terms of severity of illness or risk of death. However, it does spread much more easily, and therefore it is really important to take strict precautions to prevent the spread of the virus. This includes maintaining strict hand hygiene, social distancing and wearing a mask.

There is no evidence to suggest that the vaccine poses any additional concerns for people with Down syndrome compared with the general population.

All information relating to Down syndrome and COVID-19 can be found here. This is being updated to take account of new research findings and updated UK government advice as it becomes available.

19.7.2021

This site provides essential information for healthcare professionals on ‘best practice’ medical care for people with Down syndrome in the UK and Ireland. It has been produced by the UK Down Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland.

This site has been developed to provide a resource of evidence based information towards this aim and includes

  • DSMIG Information resources- these are resources developed by DSMIG and include Guidelines for basic essential medical surveillance, key points and awareness notes, Personal child health record insert, Growth charts etc
  • Other Information resources- this is a wider range of resources including articles , other websites that we have found useful
  • Information about DSMIG activities

The website has been developed primarily to equip healthcare professionals with the resources they need to help them provide good, evidence based care for people with Down syndrome.

Although designed for health professionals we hope it will be of interest and use to a wider range of people who are interested in promoting health and well being of those with Down syndrome including parents and carers. We do however wish to stress that it is intended to complement, and never replace, direct medical consultation. For information more specifically designed for parents and carers please see other organisations.

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